How many takers for this PAN World Open Proposition Highly Ambitious but achievable within the time frame of 2 yrs positively, since blue print of this treasure hunt is ready

I am writing this open letter to bring to your attention a critical issue that requires immediate action and support. As a single mother with a disability and a chronic critical degenerative neurological condition, I am facing numerous challenges that are not only affecting my personal well-being but also hindering my ability to contribute to society.

Background :

I have been diagnosed with Parkinson's disease, a debilitating neurological condition that has significantly impacted my health and mobility. Despite my condition, I have remained resilient and determined to lead a fulfilling life. I have pursued higher education, earning a Ph.D. in Technology Management and Sustainable Development, along with triple postgraduate ones in Mathematics, IT, and International Business Management. I have also gained over 40 years of enriched academic and professional experience across various domains, including software and IT, R&D, corporations, e-governance, intellectual property rights, and more.

Current Situation:

However, my journey has not been without its obstacles. As a single mother, I have faced numerous challenges in raising my son and managing my health condition. The financial burden of medical expenses and the lack of a stable income have added to my struggles. Despite my qualifications and experience, I am currently unemployed and have chosen to become an independent researcher in the field of Artificial Intelligence for Humanity. My focus is on Accessibility, Assistive Technologies, and IPR, with the aim of revolutionizing learning aspects for nation-building.

Appeal for Support:

I humbly appeal to the authorities to recognize and support my rights as a single mother with a disability. I believe that the following measures are essential to ensure my well-being and enable me to contribute to society:

1. Financial Assistance: I request financial assistance to cover my medical expenses and provide for my son's well-being. This support will alleviate some of the burdens I am currently facing and allow me to focus on my recovery and research endeavors.

2. Access to Healthcare: I urge the authorities to ensure that individuals with disabilities have equitable access to quality healthcare services. This includes timely diagnosis, appropriate treatment, and access to necessary medications and therapies.

3. Employment Opportunities: I seek assistance in finding suitable employment opportunities that accommodate my condition and allow me to utilize my skills and experience. I am confident that my qualifications and expertise can be valuable assets to any organization.

4. Legal Recognition of Self-Diagnosed Conditions: I request that self-diagnosed conditions be recognized legally. In many cases, individuals with chronic illnesses may not have access to proper medical facilities or financial resources for a formal diagnosis. Recognizing self-diagnosed conditions will ensure that individuals receive the support and accommodations they need.

5. Support for Self-Developed Therapies: I have proactively developed self-therapies to manage my condition. I believe that these therapies have the potential to benefit others with similar conditions. I kindly request the authorities to provide support and recognition for self-developed therapies, subject to appropriate evaluation and validation.

Conclusion

As a single mother with a disability, I am determined to overcome my challenges and contribute to society. I believe that by providing the necessary support and recognition, the authorities can empower me and countless others like me to lead fulfilling and productive lives. I am willing to work collaboratively with medical professionals and government officials to set a precedence and advocate for the rights of individuals with disabilities.

Thank you for your attention to this matter. I look forward to your positive response and support.

Here are the links of mt deteriorating condition;

https://youtube.com/shorts/2pSXxjTp4dc?si=EP6NogpDdd6G8rkU

https://youtu.be/hJ5RRnq6GYM?si=61C2OSuRZUPlPkXZ

https://youtu.be/wr4R-W-YxrI?si=IMkir8INA4YV_8TM

https://youtu.be/6VOjUci72uk?si=0HzfXQHz_c5oP9hl

https://youtu.be/2p5GubN2k4Q?si=pMCWjc9COeEBAZ6-

https://youtube.com/shorts/XITJGOM6SGI?si=4aCmzmryB1WY-YrI

https://youtu.be/5qfbnF_Q8Ug?si=vwRQ3bnmTDJ5MtJT

https://youtube.com/shorts/McVfC3KaYJs?si=dAzd9opTO0A2-RhY

https://youtu.be/C7JMmzTN-5U?si=ABBlo8gHCvrWDCGC

My Social Media Presence :

Blogs :

https://prithisd.blogspot.com/ (Technical Blog)

https://snehdeep-lcc.blogspot.com/ (Muti-activity centre for all ages & abilities)

Youtube Channel (at a very nascent stage right now, looking for a good designers, content creators & social media experts)

https://www.youtube.com/@Technocrat_Edupreneur/about

LinkedIn

https://www.linkedin.com/in/priti-p-3913836ĺ⁰

PFA for your kind perusal please 

From reply and action will be highly appreciated

Thanks and regards

Dr. Priti Patil 

+918767865884 (WhatsApp)

https://docs.google.com/document/d/1dJO5IBfx_V2uiFGJsd-XKI4X7Ha5ua8MbIlgbxX9dWk/edit?usp=drivesdk

https://docs.google.com/document/d/12VfqerppBbe8YgykotlK8zanzFwunwX2Q8M25naIjKg/edit?usp=drivesdk 

https://drive.google.com/file/d/1XJ5CtOgQPWsGApJ7u9svU3aN_olkR9aI/view?usp=drivesdk

https://snehdeeplcc.wordpress.com/2023/11/13/17/

https://medium.com/@priti.priyu.nimhans/this-is-this-is-a-tribute-to-my-mother-that-we-are-adopting-few-needy-and-deserving-minors-that-a2a074bd8879

The Journey of a Mother and Son with Special Needs

As a disabled person, having the Station Manager help me catch the train is always the best option, especially when the coach positions are set up in a haphazard way and the train lands at a different platform number. Murphy’s Law seems to always be at its best in our case. I have to help myself and my son, who has his own limitations, while trying to keep everyone’s sanity intact and make the most out of each trip. At the same time, I try to make everyone around me aware of our special needs, which are quite random in nature and genuine.

Support from Pantry Car Staff

I also try to get support from the Pantry Car staff, including the Incharge and support staff. Our journey has been a mixed bag of experiences - some rewarding, some bitter and frustrating. But mostly, every experience is a learning opportunity for me and my son. Our recent trip from Pune to Bangalore and back was so rewarding for both of us. We both have our own constraints when it comes to dealing with unpredictable situations. We try our best to cope with each situation as a learning opportunity while making every system aware of our existence as people with special needs.

Dealing with Anxiety

We started this journey out of the need to be on our own and deal with our anxiety, which is an inherent part of our chronic ailment. It may not be apparent at first glance, but those who experience it either empathize with us or threaten us or reward us. This time, serendipitously, it has enlightened us. I am going to discuss this in my brand new group of chosen ones who value such enriching experiences that lead my intellectual urges to flow with creative juices.

Creating Intellectual Assets

This ultimately leads me to create intellectual assets about which I have been vocal and have tried to express my intellectual urges to contribute to the knowledge economy by recommending a win-win situation for every system and community - whether it’s a government entity, co-passengers, public sector entity, healthcare sector, support groups, hypocritical relationships, toxic workplaces or unsupportive habitats in the education system.

Highlighting Real-Life Incidents

I am going to highlight a few real-life incidents that my son and I have experienced on our journey as a mother-son duo of outliers who have been fighting for their existence for more than two decades. We are still high on our ‘josh’. Now, as a mother who needs special care after critical medical treatment that will be life-changing for both of us, I need to create good support for myself first and then for my prodigy son who is now an IITian and quite mature for his age considering the struggles his mother has gone through raising her only child single-handedly with all her dignity while playing dual roles as both parents.

Challenges of Single Parenting

The challenge posed by single parenting was having a gifted child identified by renowned psychologists’ research groups about which I had never heard anything before. On top of that, I was gifted with a chronic, disabling, irreversible, non-curable and dreadful ailment that was self-diagnosed and then easily confirmed by almost ten different medical experts. Since then, my journey of survival has been full of challenges.

Gadgets Club

#seniorcitizens #technicalsupport #literacyforall  #literacymatters #selfreliance #fomo #snehdeepLCC #patienceisavirtue #socialcause

*New year gift to your loved ones, gift them self-reliant, confident & independent future ahead 🥰🤗😎😇*

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